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NAMI Michigan Board of Directors

Resolution on Michigan Mental Health Care Reform

November 18, 2002

Abstract

Over the last twelve years, the policies of the state administration have produced a mental health system that fails to meet the needs of the disabled persons it is intended to serve, and provides a system of services that is fragmented, inefficient and lacking in accountability for the management of public funds.
This resolution describes the current situation and then proposes a number of changes designed to

·Reduce costs

·Improve quality of services

·Implement mandated priorities

·Make the system accountable to the public

·Make more effective use of available resources

·Reduce stigma

·Exploit new technology

·Involve consumers and their families

·Ensure continuity of care

·Establish medical leadership

·Protect individual rights

·Reduce criminalization

·Reach out to persons in need of treatment

·Establish a system of integrity, dedicated to meeting the needs of the community for mental health services.

This document describes the background that is the basis for this resolution, a list of proposed changes to the operation of the Michigan mental health system, and a number of fundamental changes that are needed in organization and funding in order to establish a system that will be properly focused on meeting the needs of persons with mental illness and developmental disabilities and children with serious emotional disorders.

I. Background


In the Michigan mental health system during the last twelve years, policies were adopted by the administration and the legislature which were intended to follow the national path of deinstitutionalization, decentralization and integration into the community of persons afflicted with severe mental illness and children with emotional disorders.However, in Michigan these initiatives resulted in a fragmentation of the system and loss of long-term care for many of the persons in need of such care.
Furthermore, there have been insufficient services available in the community to meet the needs of many persons with severe mental illness.Failure to utilize properly the most effective medications and services delays the recovery, and sometimes exacerbates the symptoms of persons with mental illness, thus significantly increasing the required levels of care and the cost of the public mental health system.

Inadequate treatment and services also contributes to unnecessary pain and suffering of persons with mental illnesses.The symptoms of mental illness not only interfere with the ability of an ill person to work, but they also impair the health and ability of family members to perform effectively in their jobs, thus resulting in a loss of productivity to Michigan employers, loss of tax dollars, and increased costs of health care in general.Insufficient treatment and services also gives rise to an increasing number of persons with mental illness who are in jails and prisons, or homeless or whose illness results in death.

Even during the better economic years of the mid-90’s, the administration was focused on attracting business and jobs to Michigan, building roads and prisons, and reducing taxes by restricting budgets in other areas, including the already stringent mental health budget.

As part of that cost-cutting policy, Michigan has recently introduced managed care for the delivery of mental health services for persons on Medicaid.This, along with a policy of decentralization and privatization has resulted in a shifting of responsibility and control from the state to the local community mental health programs, and in turn to contracting agencies.This has produced multiple layers of administrative overhead, duplication of efforts, fragmented and ill-defined programs and loss of control over the management of public funds.The management of these funds is thereby removed from public scrutiny otherwise enabled by the Freedom of Information Act, the Open Meetings Act and competitive bidding.

Especially in view of the recent economic recession and the large state budget deficit, these policies of abdication of responsibility and decentralization of the Michigan public mental health system have resulted in a further breakdown in the quality, appropriateness and accessibility of services for persons with serious mental illness.


II. Proposed Changes within the Current System


Michigan will now begin a new state administration.This provides the opportunity to make the system more efficient, more accountable, and more responsive to the needs of Michigan citizens.Based on the experiences of our members and insights into the current administration of the public mental health system we propose the following changes.

DCH Economies of Scale

1.The Department of Community Health (DCH) should achieve economies of scale through improved operating efficiencies and elimination of duplicated effort (including activities of CMHSP contractors) in administration, development of policies and standards, development and delivery of training programs and development and management of information systems.

DCH Leadership

2.DCH should provide medical leadership and have primary responsibility for adoption and implementation of advanced medical practices, training programs, treatment and support programs and review of medical practices.
3.DCH should conduct pilot programs to validate, refine and establish standards for improved treatment and rehabilitation programs and techniques.Non-standard programs of any CMHSP should only be allowed with approval, close supervision and evaluation by DCH.

4.DCH should conduct public education and awareness programs to combat stigma and develop public sensitivity to the plight of persons with mental illness and their families, the need for treatment and services, and the need for research.

Standards of Care

5.DCH should prescribe clear, consistent, state-wide (a)level-of-care protocols, (b) criteria for determining need for treatment, (c) program design and performance standards, (d) qualifications for persons providing direct care and services, and(e) mandatory services based on the degree of a person’s disability, a hierarchy of needs, and the current level of funding.
6.Prior authorization should only be required for extraordinary treatment or services and only if delay involves no risk to the patient.DCH level of care protocols should provide sufficient guidance for physicians to make appropriate treatment decisions.

Accountability for Service Delivery

7.At least annually, DCH should perform statistically valid studies to determine the total needs and unmet needs for services in each CMHSP catchment area.These statistics should be broken out by persons who qualify for Medicaid, those with private health insurance and those who don’t qualify for Medicaid and don’t have private insurance.Unmet needs should include persons underserved or inappropriately served by the CMHSP as well as unmet needs of persons with inadequate private health care insurance coverage .
8.DCH should contract for independent review of CMHSP programs to obtain objective measures of outcomes, appropriateness of services to clients receiving them, compliance with program standards, quality of services delivered, quality of life of clients and those around them and effective management of funds.

9.DCH should define required CMHSP reports to be provided to CMHSP board members and the general public to assure accountability for financial management, program performance and quality assurance.

10.DCH should enforce Mental Health Code requirement for each CMHSP to have a pre-booking jail diversion program.

11.DCH should be required to place in receivership (i.e., take away board authority) any CMHSP that mismanages public funds or fails to provide adequate and appropriate treatment and services to the priority populations as defined by standards set by DCH and approved by the legislature.

Funding

12.DCH should maximize funding for services to persons with mental illness from alternative sources.State funding should match all available Federal funds such as Medicaid and vocational rehabilitation.
13.Because persons with mental illness are not same percentage of the population across the state, CMHSP funding should reflect the need for services in the associated community and the level at which the CMHSP meets that need.

14.DCH should report to the legislature the extent to which a proposed mental health budget will affect the quality of care and the extent to which persons in need of services will be unserved or underserved.

Role of CMHSP Board

15.CMHSP board members should represent community interests, take action to prevent the recurrence of treatment and service failures, and ensure the quality and effectiveness of services funded by the CMHSP.This responsibility should not be delegated to administrators and contractors as promoted by the Carver Governance training program.Board members should have access to CMHSP staff, service programs and recipient grievances and rights complaints to obtain first-hand information on the effectiveness of CMHSP administration and programs.
16.The CMHSP board should insist on regular and timely reports on finances and services for consideration by both the board and the public.

Continuity of Care

17.DCH should implement regulations and enforcement measures to ensure that transitions of clients between agencies and systems of care are appropriately coordinated including the transitions from children’s to adult services, hospital to community services, jail or prison to community services, and between community agencies as a result of relocation, changes in contractors or changes in service needs.
18.CMHSP case managers should participate in timely treatment planning for their clients hospitalized, incarcerated or losing access to CMHSP services.

19.DCH should provide a mechanism by which each CMHSP will identify and provide appropriate services to citizens of their catchment area when they are committed for hospital care or incarcerated in jail or prison.

Scope of Services

20.Each CMHSP should be committed to responsive treatment based on funding priorities for all persons in their catchment area suffering from a mental illness including persons living with their families, persons with private insurance, and persons who do not recognize their need for treatment.The system should complement alternative support systems and funding sources to provide needed services not otherwise available.
21.The CMHSP should assure that the basic needs of persons suffering from a mental illness are met including food, clothing, safety, shelter, physical and psychiatric medical treatment and dental care.

22.CMHSP services provided to individuals should be based both the Mental Health Code requirement that priority be given to persons with the most severe forms of disability, and Maslow’s needs hierarchy.

23.Each CMHSP should make available acute hospital and long-term, sub-acute hospital care for persons whose psychiatric symptoms merit that level of care without requiring that they meet commitment standards.Units providing such care should be within a reasonable driving time of the person’s immediate family.

Treatment Plans

24.The individual treatment plan should identify all of the treatment and supports the client needs to function in the community and promote recovery.The treatment team should either provide those supports, ensure that those supports are provided by others or document why the need must remain unmet due to funding restrictions.

Outreach

25.DCH and the CMHSPs should have a joint responsibility to educate the public about the medical basis for mental illness and make the community aware of the symptoms of persons who should receive mental health services and the services that are available.
26.The CMHSP should respond to family and community concerns about individuals evidencing symptoms of mental illness.The CMHSP should go into the community, assess the need of an identified person and attempt to serve a person in need even though they may not be receptive.Furthermore, the CMHSP should take responsibility for obtaining commitment orders for persons who meet commitment criteria including those with an inability to attend to their basic physical needs as provided by the Mental Health Code.

27.The CMHSP should be responsible for obtaining and enforcing alternative treatment orders for persons who fail to recognize their need for treatment.

Role of Families and Advocates

28.Representatives of consumer and family advocacy groups should have an active role in the development of policies and programs and monitoring of performance of the Department of Community Health, CMHSPs and contracting agencies.An advisory committee of consumers, families and advocates should be established excluding mental health system employees, board members or service providers.Representatives should be chosen by the advocacy groups, not by DCH, a CMHSP or a contractor.
29.Families should be given the opportunity to choose their level of involvement in the lives of mentally ill family members and should be able to grow old with the peace of mind that their family member will continue to receive needed treatment and supports.Clients should not lose nor receive diminished financial aid when they live with their families.

30.Failure of a treating professional to accept and give reasonable consideration to input from a client’s family or close associates regarding the client’s symptoms should be considered a serious violation of both the concerned person’s and the recipient’s rights.

Medical Decisions

31.Medical decisions, including the medical necessity for support services, should be made by a physician after face-to-face contact and with the informed consent of the patient or their legal representative.Denial of services that may be medically necessary should require a physician to have face-to-face contact with the client and to document an appropriate diagnostic evaluation.An overriding change in the order of a treating physician should only be allowed with the agreement of two other physicians after face-to-face examination of the patient.
32.DCH should establish a peer review system (review of professionals by their peers) to monitor use of prescription medications by individual physicians and to assure that clients receive prompt and effective mitigation of symptoms.Physicians should not be constrained by a formulary or requirement for prior approval.

Client and Family Rights

33.Clients and their advocates should be given informed choice in the selection of services, professionals, direct care providers and accredited provider agencies.CMHSPs should maintain a resource center and appropriate handout material so that clients and advocates know what services are available and appropriate for the client’s disability.This information should be considered in DCH reviews of CMHSP performance to ensure that clients are given appropriate, informed choices.
34.CMHSPs should implement procedures by which clients with impaired judgment will have independent patient advocates with preferences to establish family members as guardians or engage participation of family members motivated to act in the best interest of the client.Patient advocates should be part of the treatment team.Patient advocates should be independent of the CMHSP and its contractors, and the services of professional advocates should be reimbursed by the CMHSP at a reasonable rate.

35.DCH standards, programs and policies should recognize mental illness as a long-term disability like diabetes or multiple sclerosis, and should ensure that short-sighted efforts to cut costs do not deny clients the opportunity for recovery nor put them at risk of losing the treatment and supports that have enabled recovery.

36.All clients with a mental illness should be referred for diagnostic procedures necessary to rule out physical causes of their disability such as tumors, poisons and endocrine disorders.

37.DCH should develop a brochure for families and other interested persons regarding their rights such as the right to give information to treating professionals, the right to receive information about the illness, the right to be treated with dignity and respect, the right of families of children to pay a reasonable amount for services, the right to file complaints an dgrievances, and how to initiate a Medicaid appeal.This brochure should be given to any person who accompanies a person seeking treatment, to family members and to other interested persons.


III. Fundamental Changes to the System


The following important changes are considered to be beyond the scope of the current public mental health system organization and would require significant changes in responsibilities and funding.
1.Legislation or contract language should require that all agencies, public and private, receiving public funds for the delivery of mental health services, directly or indirectly, should be subject to the terms of the Freedom of Information Act (FOIA) and the Open Meetings Act.Appropriate and timely notice should be provided for meetings using telephone recordings, web pages and email subscriptions.Notice should occur no later than when board members are notified.Charges for documents provided under FOIA should be at a standard rate comparable to generally available commercial copying services.

2.All publicly funded contracts should be let through open bidding including those let by CMHSP contractors.DCH should establish policies to prevent conflict of interest in both the bid selection process and contract oversight.

3.There should be no delegation of risk by CMHSPs to contractors or clients. CMHSP contracts with local providers should be fee for service.Control of costs should be through review of individual cases for the appropriateness of services provided to the condition of the recipient.

4.The CMHSP should pay for appropriate mental health services provided to all citizens of their catchment areas in jails and prisons unless the service is covered by the client’s private insurance.

5.DCH should promote the adoption of legislation for mental illness parity in private health care insurance to reduce the diversion of people from private to publicly funded services and to promote early intervention for persons with mental illness thus improving the long-term prognosis.

6.The State of Michigan should implement licensing of direct care workers to assure proper qualifications, on-going training, and proper conduct.Employers should be required to report misconduct so that workers cannot avoid responsibility by seeking employment with another service provider

7.The Office of Recipient Rights should be separated from the Department of Community Health, CMHSPs and contract providers, and should employ rights officers across the state to monitor, investigate and impose penalties for rights violations.

8.CMHSPs should be re-organized so that funding and management of programs is not divided between the CMHSPs responsible for Medicaid spending and those left with only responsibility for expenditure of general funds.

9.A system of mental health courts should be established to provide specialized disposition and follow-up of persons with mental illness who are charged with a crime.

10.Legislation should be adopted to require the recognition of advanced directives regarding choices of treatment, services and service providers by CMHSPs and other mental health service providers.

11.The Michigan Medicaid program should be revised to provide entitlement for medically necessary services that have been defined as alternative services under Chapter 3 of the Medicaid Manual.

12.The legislature should adopt a more sensible approach to meeting the need for persons to continue receiving Medicaid benefitsfor a life-long disability when they are able to become employed.