AN UPDATED HISTORY OF NAMI MICHIGAN

by

Hubert C. Huebl, MD

May 15, 2006

 

ACKNOWLEDGEMENTS

 

     This history of the formation and actions of NAMI Michigan was compiled from histories previously written by Hank Spitzig and Erma Barber, and resource materials provided by: Carol Rees, Donald and Helen Hill, Hope and Fred Cummins, Norma Prouty, Betty Smith, Clarence "Doc" and Jimmie Porter, and Tom Coles.  It also includes personal communications with: Hank Spitzig, Arlie Kinnee, Lou Vescio, Bev Lewis, Ray Gauthier, and David Sprey. 

 

FORMATION

 

     In 1974, a group of concerned parents of mentally ill persons in Lansing, assisted by the local Community Mental Health Agency, founded a support group named "Oasis Fellowship".  It was probably one of the first support groups for family members of persons with mental illness in the United States.  During the next few years, a few additional family support groups formed as isolated, independent organizations located sporadically throughout Michigan. 

     In the summer of 1979, 285 people representing mental illness self-help support groups from around the country met in Madison, Wisconsin.  As a result, the Alliance for the Mentally Ill (AMI) was formed. 

      Over 30 people from Michigan attended the meeting in Madison.  Following the Madison meeting, in 1980, many of the Michigan people who had attended that meeting, met in Battle Creek and founded a statewide organization, both of consumers and of families, called "Citizens for Action in Mental Health" (CAMH).  Because of disagreement with the use of the term "for the Mentally Ill" in the title, they did not affiliate with AMI at that time. 

       Meanwhile, a few other family support groups had formed in Michigan and did affiliate directly with AMI as independent organizations.

      In the Fall of 1983, about a dozen parents of mentally ill persons in Washtenaw County attended a ten week family education seminar conducted by Community Mental Health staff people, Joanne Reuss and Carol Heydlauff.  These families decided to form an organization, and on January 9, 1984, six persons, including Helen and Don Hill, and Carol Rees, met in Ann Arbor at the home of the Hills.  (Jean and Victor Hawthorne were unable to attend because of icy roads).  They formed an organization called "Friends for Mental Health".  Seventeen other family members joined them for monthly meetings at the Hawthornes' home. 

      In July, 1984, Tom Sovine, the Executive Director of the Mental Health Association in Michigan scheduled a meeting to involve family and consumer groups in a round-table discussion of issues pertinent to Michigan's mentally ill.  Prior to the meeting, sixteen (16) surveys were returned identifying 58 issues for discussion.  Forty three attended from various Michigan family/consumer groups.  The first meeting was held at the Sheraton Oaks Hotel in Novi, Michigan on September 22, 1984.  Among those represented were delegates from: AMI Oakland County, Citizens for Action in Mental Health, Family Support for Mental Recovery-Genessee County, Oasis Fellowship-Lansing, Residential Care Alternatives-Downtown Detroit, and Suburban West-Wayne County.  A proposal was made at this meeting to establish some form of an umbrella organization which would act as a vehicle for a broad, all-inclusive coalition with by-laws, and a board of directors.  A suggestion was made to call this group the "Federation of Mental Heath Groups".  However, many were opposed to forming this type of dictatorial structure. 

      On October 15, 1984, Carol Howe, Assistant Director of the Office of Affiliate Relations of AMI National, responded to a letter from Erma Barber, President of Family Support for Mental Recovery, Inc., Genessee County, requesting information on rules and regulations on forming a State AMI and working with coalitions.  Carol Howe, via phone and letter suggested information be sent to Michigan AMI families to encourage them to stand true to AMI and organize under the umbrella of AMI and she also sent each family group information from the national office.  

      In December, 1984, the "Federation" ceased for various reasons.  It did, however, provide a forum for many of the independent AMI groups from around the State to meet and get to know one another.  Thus, a dialogue began among AMI delegates that created a foundation for a statewide organization.   NAMI took the position to have an informal working relationship with the Mental Health Association in Michigan.  The Open Door Policy would be AMI's position.  

       On January 15, 1985, Hank Spitzig of the AMI Oakland County, invited Beverly Young of AMI to come to Michigan and meet with the State AMI groups to discuss a Michigan Statewide organization.  On January 31, 1985, National AMI agreed to accept expenses for her trip.

      The meeting with Beverly Young took place in Southfield on February 12, 1985, with many of the Michigan Affiliates in attendance.  Beverly explained how the Wisconsin AMI was organized and what some of its functions were.  She pointed out how essential a statewide organization was for the purposes of advocacy in reaching legislators and the governor with any kind of clout.  While the meeting succeeded in bringing together some of the state affiliates, it did not immediately bring about a state organization.  

       On June 13, 1985, AMI Oakland County, the largest Michigan AMI affiliate, and incorporated as AMI of Michigan, initiated a plan to encompass their affiliate in the role of the State AMI organization.  This plan was sent to National AMI (hereafter referred to as NAMI),  along with a State AMI affiliate roster:

1)    AMI of Michigan Southwest (Oakland)-Ellen Hayes

2)    Family Support for Mental Recovery, Inc. (Genessee)-Erma Barber

3)    Residential Care Alternatives Family Support (Wayne County)-Rose Dilloway

4)    Suburban West (Wayne County)-Louise Skripp

5)    Dearborn Alliance for the Mentally Ill (Wayne County)-Agnes Hagopian

6)    Oasis Fellowship (Ingham County)-Arlie Kinnee.

 

    This plan was opposed openly by "Citizens for Action on Mental Health" (CAMH), who felt that they were the State organization, yet opposed using the term "Mentally Ill" in the title.  Over the next few weeks, attempts were made by the two groups to be certified as the official State AMI group.  Calls, letters, and visits were made to the National AMI office to clarify which group qualified as the Statewide AMI Chapter.  Both "Citizens for Action in Mental Health" and the Alliance for the Mentally Ill of Michigan submitted applications for certification that were held in abeyance by NAMI.

       Jim Howe, President of NAMI, felt that, while both organizations might qualify as the State organization, NAMI did not have "specific" and "stated" criteria for certification as State AMI organizations.  He also expressed the opinion that he did not know enough about conditions in Michigan, and he believed that, in keeping with the "grass roots" character of NAMI, a "choice should be made by Michigan, not NAMI".  In July, 1985, he took this matter of choosing applicants before the NAMI Board.  They, also, would not choose.  Instead the decision was:

1.     Both groups meet NAMI's requirements for eligibility assuming that Citizens for Action in Mental Health is willing, as their representative stated orally, to change their name to include the name "Alliance for the Mentally Ill". 

2.     The Board does not have enough local knowledge to choose between the two groups and, in any event, believes that, in keeping with NAMI's grass roots character, such a choice should be made by Michigan, not NAMI.

3.     Recognizing the difficulty this leaves for both groups, NAMI is willing, if requested, to send a mediator to help work out terms for either a merger of the two groups, or the creation of a new group to form a state Alliance that is accepted by a concensus of Michigan NAMI members.   

     The problem Michigan was experiencing prompted NAMI to add clarification to the National bylaws for State AMI's qualifications. 

        The first attempt at a Michigan solution was made on July 25, 1985 by Erma Barber, President of Genessee County Family Support for Mental Recovery AMI.  She sent a letter to Ellen Hayes, President of Michigan AMI, Oakland County, with a copy to NAMI's President, Jim Howe.  In the letter, she proposed that the Michigan AMI affiliates meet in Flint to resolve their differences and to form an independent State AMI.  She offered to have Genessee County AMI initiate and host this organizational meeting.  This plan was accepted by NAMI.  Oakland County AMI withdrew their proposal to encompass their affiliate into a statewide organization and then helped to organize the first Statewide AMI organizational meeting to be held in Flint, Michigan. 

     On August 19, 1985, a letter was sent to the state AMI affiliates, over the signatures of Hank Spitzig and Dorothy McQueen of Oakland County AMI with reference to:

1)    rule for credentialing from NAMI

2)    list of paid affiliate memberships to NAMI

3)    a second reminder of the meeting date for the first State AMI meeting in Flint, Genessee County on September 14, 1985

4)    a suggestion that each affiliate be allowed two delegates for the first meeting.

     This meeting was for the purpose of structuring a State Alliance.  

     On September 14, 1985, the first meeting was held at Community Industries, G-1037, Coldwater Road, Flint, Michigan, hosted by AMI Genessee County Family Support For

Mental Recovery, Inc., with representatives of eight Michigan affiliates in attendance.  Their delegates were as follows:

AMI of Michigan-Oakland County-Dorothy McQueen and Hank Spitzig

            Guest: Ellen Hayes

            Dearborn AMI-Wayne County-Jimmie Porter and Caroline Zolkowsky

            Citizens for Action in Mental Health (CAMH)-a statewide coalition

                        Lynn Lasecki and Mark Paulson-Guest:Chris Vahn, Rosemarie Sperbeck

            Family Support For Mental Recovery-Genessee County-Erma Barber and

                        Glenda Zafiroff-Hosts: Elayne Cole, Myrtle Watkins, Jean Weaver

            Friends for Mental Health AMI-Washtenaw County-Victor Hawthorne and

                        Donald Hill

            Oasis Fellowship-Ingham County-Bill Gamble and Betty Smith

            Residential Care Alternatives-Wayne County-Rose Dilloway and

                        Betty McCardwell

            Suburban West Support Group-Wayne County-Peggy Spitzig 

 

     Bill Gamble, Lynn Lasecki, and another guest: Woody Sanford, had been at the organizational meeting of NAMI in Madison, Wisconsin in 1979.

       Rose Dilloway acted as temporary chair and Dorothy McQueen as temporary secretary.  The meeting was opened with some apprehension because there had been some talk of a couple of the affiliates walking out if they were not treated fairly.  NAMI's refusal to choose between the two prior applicants for state certification left the problem in the hands of the delegates.  An impasse seemed to be developing, when a compromise was reached to allow CAMH three votes for the purpose of the organizational meeting only.  The motion was then made and amended to follow NAMI guidelines to form a statewide group to be affiliated with NAMI.  The vote was an overwhelming eleven yea with one abstention.  Thus the State Alliance was born.  A steering committee was set up with Rose Dilloway as temporary chair to consider organizational by-laws at the next meeting to be held in Lansing, Michigan.  At that time, Hank Spitzig suggested that the organization use the Wisconsin State Alliance by-laws as a model. 

       On October 17, 1985, Hank Spitzig sent a letter to Lynn Saunders of NAMI advising her that eight Michigan affiliates formed a statewide organization in Flint on September 14, 1985. 

 

b

Delegates present:  Erma Barber, Jean Weaver, LynnLasecki, Peggy Spitzig, Dorothy McQueen, Hank Spitzig, Ellen Hayes, Rosemarie Sperbeck, Chris Vahn, Mark Paulson, Betty McCardwell, Caroline Zolkewsky, Jimmie Porter, Bill Gamble, Betty Smith, Donald Hill, Victor Hawthorne, and Rose Dilloway.

 

       On October 19, 1985, the second meeting was held in East Lansing at the Unitarian Universalist Church, hosted by Oasis Fellowship.  The meeting was chaired by Ernie Curtis.  Gini Neuville served as temporary secretary.  By-laws were unanimously

proposed, approved, and adopted, using, as a model, the AMI of Wisconsin and NAMI's by-laws.  NAMI's Preamble, with minor revisions, was adopted as the State Preamble.  The next meeting was scheduled for November, 1985, in Southfield, Michigan to consider temporary officers.  Hank Spitzig agreed to serve as temporary chair.

 Erma Barber, Dorothy McQueen, Betty Smith and Hank Spitzig were appointed to nominate temporary officers. 

       On November 23, 1985, the third meeting was held in Southfield, at the Mental Health Building.  Hank Spitzig served as temporary chairperson.  The slate of temporary officers was elected unanimously.  They were as follows:

                        Hank Spitzig-President

                        Arlie Kinnee-Vice President

                        Elaine Lepak-Recording Secretary

                        Dorothy McQueen-Corresponding Secretary

                        Peggy Spitzig-Treasurer

    

     Five members were elected to serve on the Executive Committee with the officers.  Those members were:  Erma Barber, Rose Dilloway, Victor Hawthorne, Lynn Lasecki,  Betty Smith, and Carol Rees of Friends for Mental Health, Washtenaw County.  The Board decided to have the President solicit $25.00 from each affiliate for immediate expenses until a dues structure could be established.  The Chair proposed a temporary name for the Group as "The State Alliance for the Mentally Ill of Michigan".  Dorothy McQueen added that the group could become known as the Alliance for the Mentally Ill of Michigan when the Birmingham group changed their name.  It was proposed that incorporation, NAMI certification, and a newsletter were the three priority issues that had to be addressed. 

     In addition to the Board members, also attending the meeting were Shirley Dyer and Angela Romano of PACE, Macomb County; Chris Kalen and Mark Paulson of PATH, Saginaw County; Joanne Verbanic of Schizophrenic Anonymous, Oakland County; and Janet Risse from AMI Eastside, Wayne County-all of whom had been invited by Hank Spitzig.  Janet Risse pointed out that the Eastside group had mailed in their application to NAMI.  The Board then voted to include the Eastside group as a member of the State Alliance.  At this point, there were then nine affiliates in the State Alliance.

       In December, 1985, application for certification by NAMI as the official statewide organization was made.  Later in December, 1985, a letter of acceptance was received by the State AMI, in care of Hank Spitzig, from NAMI, signed by Laurie Flynn, Executive Director, and by Lynne Saunders, Director, Office of Affiliate Relations. 

      On January 4, 1986, the first meeting of the Executive Committee of the State Alliance for the Mentally Ill was held at the Michigan Union Building in Ann Arbor.  Victor Hawthorne proposed having a Mental Health Symposium on May 31, 1986 at the Conference Hall in the new School of Public Health at the University of Michigan, in cooperation with the Washtenaw County Community Mental Health Service.  Elaine Lepak was designated chairperson for a newsletter.  An informal working relationship with the Mental Health Association was developed. 

       On January 10, 1986, Henry Spitzig, Arlie Kinnee, Peggy Spitzig, Erma Barber, and Rose Dilloway met at the home of Arlie Kinnee in Lansing.  While there, Rose Dilloway typed the incorporation papers, and the group drove to the Commerce Department and filed application documents to become incorporated using the name: "State Alliance for the Mentally Ill of Michigan".  Application also was filed with the Internal Revenue Service for not-for-profit 501-c-3 corporation status. 

       On February 8, 1986, the Executive Committee and Board met at the McPherson Community Memorial Hospital in Howell.  Bylaws were formally adopted.  A State AMI brochure was presented.  A post office box number was acquired under the State AMI name and a letterhead was designed.  A bulk postage rate was established.  Joanne Verbanic of Schizophrenics Anonymous was nominated as the first state delegate to the NAMI Client Council.  The first statewide conference was proposed by Dr. Victor Hawthorne of the Ann Arbor group for May, 1986.  Support for Protection and Advocacy Services was promoted.  

Delegates present were:

            AMI Dearborn-Jimmie Porter

            AMI Detroit-Shirley Clarkson

            AMI Eastside-Janet Glenn

            AMI Michigan Oakland-Dorothy McQueen

            CAMH-Lynn Lasecki, Rosemarie Sperbeck

            Family Support for Mental Health-Erma Barber, Glenda Zaforoff

            Friends for Mental Health-Victor Hawthorne, Carol Rees

            Oasis-Arlie Kinnee, Betty Smith

            Suburban West-Peggy Spitzig

 

       In February, 1986, notification from NAMI was received that the organization had been accepted and certified as the official Michigan "State" affiliate.  Elaine Lepak, the newsletter editor, produced the first newsletter in early February.  Eight hundred copies were mailed. 

       The new State AMI organization was active immediately.  State Alliance members: Rose Dilloway, Evan Lasicki, Lynn Lasecki, Betty Smith, and Hank and Peggy Spitzig became involved on the Services Development Board.  They participated in acquiring a grant of $301,000.00 from the Department of Mental Health to the Michigan Protection and Advocacy Service (P&A) to implement protection and advocacy services for persons labeled mentally ill. 

       On March 15, 1986 the Executive Committee met at the McPherson Community Memorial Hospital in Howell.  AMI of Garden City was accepted into the organization as the tenth affiliate.  The first newsletter was judged by the NAMI screening committee as one of the top ten state affiliate newsletters in the United States.  A nominating committee was elected to provide a slate of permanent officers to be elected at the first annual membership meeting to be held on May 31, 1986. 

       On April 7, 1986, Alliance members testified at the Mental Health Advisory Council meeting at Northville Hospital.  Statements of concern were given by Rose Dilloway, Victor Hawthorne, Dorothy McQueen, Carol Rees, and Hank Spitzig.  A statement of priorities and recommendations for the mentally ill was distributed by Hank Spitzig. 

      On April 19, 1986 the Executive Committee met at the St. Lawrence Mental Health Center in Lansing.  Additional delegates were present from P.A.T.H., and SHARE of Grand Rapids.  Friends for Mental Recovery changed their name to: Genessee County AMI.  A Wayne County Coalition was formed with Rose Dilloway as President.  The Nominating Committee proposed a slate for permanent officers for the meeting in May:

            President-Hank Spitzig

            Vice President-Arlie Kinnee

            Corresponding Secretary-Carol Rees

            Recording Secretary-Jimmie Porter

            Treasurer-Peggy Spitzig

 

     In May, 1986, the State AMI was accepted as a non-profit organization by the Federal Government.  These documents were filed by Hank and Peggy Spitzig.

     In May, 1986, October 5-11 was designated as Mental Health Awareness Week.

     In 1986, Dearborn AMI was founded by Agnes Hagopian, and started meeting in the evening of the second Monday of each month at the First Presbyterian Church on Brady Street.   

     On May 31, 1986, the first statewide conference was held in Ann Arbor at the University of Michigan, School of Public Health, hosted by Friends for Mental Health AMI, Washtenaw County, in cooperation with the Washtenaw County Community Mental Health Board.  At the first statewide general membership meeting the slate proposed by the Nominating Committee, as noted previously, was elected as the first permanent officers. A temporary office for the organization was set up in the President's home with a new State Alliance telephone listing.  It was agreed not to have meetings over the summer until September.         

 

 

HIGHLIGHTS OF ACTIONS BY NAMI MICHIGAN

 

 

     Over the summer months of 1986, five additional affiliates joined the State Alliance: PACE-Macomb County, AMI Southwest Family Support Group-Wayne County, Downriver AMI-Wayne County, AMI  of Antrim-Kalkaska Counties, and Schizophrenics Anonymous-Oakland County.  The State Alliance newsletter was awarded third prize at the NAMI national convention.  Circulation had increased to 1,000 copies.  Aleta Skomski of CAMH was nominated as an alternate delegate to the Clients Council of NAMI.  A committee started work on position papers for the State Alliance.  The pioneer site visitation committee of AMI members continued its work at Clinton Valley Center in Pontiac, Michigan.  The Department of Mental Health invited the State Alliance to participate on the Policy Advisory Group.

      Erma Barber, membership Chair, was invited by the Antrim-Kalkaska Community Mental Health to speak to the families with mentally ill relatives about family support groups.  Hank Spitzig testified before Representative Joseph Young, Sr., and the House Appropriations Subcommittee regarding proposed budget reductions in mental health for the fiscal year 1986-1987.

       On September 20, 1986 Executive and Board meetings resumed at the Mental Health Building in Southfield.  It was proposed to have future meetings in Howell.

       On October 11, 1986, the State Alliance, as a part of Mental Illness Awareness Week, sponsored a candlelight vigil on the steps of the Capitol Building in Lansing, Michigan.  There was statewide participation by AMI members and affiliates.  Two additional affiliates joined the State Alliance: AMI of Clare County, and SHARE of Kent County.  This brought the total number of affiliates to 17.  At the meeting on October 18th in Howell, three new affiliates joined: Saginaw, Lapeer, and Petoskey.

       The site visitation committee of AMI members was lauded by Jack Kresnick in a Detroit Free Press article.  Betty Smith was appointed by Governor Blanchard to the Citizens Advisory Board of the Department of Mental Health.  Ernie Curtis was interviewed by Channel 50 "Morning Break" regarding the aims and purpose of the AMI.  Throughout the year, efforts on the part of the Legislative Committee, at the direction of NAMI, to involve AMI members in letter writing campaigns proved to be decisive in the passing of legislation such as the Protection and Advocacy organization for Mentally Ill Individuals Act of 1986, the Vocational Rehabilitation Act of 1986, increased funding for research and the Community Support Programs to name a few. 

       The statewide recognition of AMI was evident when an invitation was received from the Copper County Community Mental Health Board which requested an AMI member to present a three-hour workshop at their convention in Iron Mountain, Michigan.  The State Alliance joined with other people and agencies from around the state in "Mental Health Educational Exhibit, Inc.".  The exhibit was mobile and moved around the state from school to school providing materials to dispel some of the myths about mental illness.  Hank Spitzig was interviewed on the J.P. McCarthy show about the State Alliance and the upcoming television presentation of the "Promise", a movie on mental illness.  Louise Skrip was interviewed about the AMI by Sue Carter of WXYT-Detroit following the presentation of the movie, "Promise".  Hank Spitzig, as the President of the

State Alliance, was invited to join a search committee for new director of the Department of Mental Health. 

       The State Alliance, under the direction of Louise Skrip, was invited to participate on April 13-16, 1987, in Health-O-Rama at the Livonia Mall, in Livonia, providing information for the first time on mental illness.  Agnes Hagopian also organized presentations at Health-0-Rama.  The Alliance agreed to work with the Michigan Association of Autistic Children in the area of vocational training to help the mentally ill.  Following a request from the Department of Mental Health, the President agreed to work with them in getting a grant from the National Institute of Health.  The State Alliance, hence, would have a source of funds to aid in financing the State Conference.  Position papers were presented by Carol Rees and adopted by the Board.  The 19th affiliate, Tri-County Alliance for the Mentally Ill-Bay City, Saginaw, and Midland Counties joined the Alliance.  There were then approximately 1,000 family members in the State Alliance.  The newsletter editor, Elaine Lepak, reported that 2,000 copies of the newsletter were being printed. 

       On April 18, 1987 Joanne Verbanic started a chapter of Schizophrenics Anonymous in Ann Arbor.  In May, 1987 Schizophrenics Anonymous dropped their membership in NAMI.

       On June 6, 1987, the second annual State Conference was held in Lansing at the Midway Motor Lodge, hosted by Oasis and the Clinton-Eaton-Ingham CMH Board.  A Board meeting also was held.  Revised bylaws were approved.  The Nominating Committee presented the following slate of officers at the general membership meeting:

                        President-Erma Barber-AMI, Genessee County

                        Vice President-Carol Rees-AMI Washtenaw County

                        Corresponding Secretary-Norma Prouty-Oasis Fellowship-Lansing

                        Recording Secretary-Hope Cummins-AMI, Oakland County

                        Treasurer-Peggy Spitzig-AMI Suburban West-Livonia

     The slate of officers was elected unanimously by the delegates, since there were no new nominations from the floor.

       During the next year, membership in NAMI continued to grow, and the number of affiliates increased.  By the time of the 1988 Annual Meeting in Flint, there were 31 affiliates, and 1,078 families.  During that year, Carol Rees started work on a Family Resource Guide booklet. 

       Regular periodic meetings between AMI representatives and members of the Department of Mental Health were arranged by Tom Watkins, Director of the Michigan Department of Mental Health.  He also began investigating conditions at the State Mental Hospitals. 

       Fr. Robert Hartigan, a clinical psychologist, affiliated with the Social Justice Apostolate of the Detroit Province of Jesuits, joined the State AMI.  In May, 1988 he rented the first office space for the State AMI at:

                                    24133 Northwestern Highway, Suite 103

                                    Southfield, Michigan  

Mr. Norman Wesley became a full time staff person, paid by a grant from Chrysler Corporation, arranged by Fr. Hartigan. 

       At the 1988 Annual Meeting, Carol Rees was elected President. 

       In the Fall of 1988, Hope Cummins became the new editor of the NAMI State Newsletter. 

       By 1989 a Forensic Committee had formed, consisting of: Arlie Kinnee, Betty Smith, Judy Hood, and Elaine Miller.  Its purpose was to work with the Forensic Center in Ypsilanti to help improve conditions for persons with mental illness who were incarcerated there.  They comprised a Citizens' Advisory Committee for the Forensic Center. 

       On February 14, 1989, the NAMI Family Resource Guide, written by Carol Rees, and funded and printed by a grant from the Department of Mental Health, was published.  

      In 1988/1989, a class action lawsuit was filed by AMI of Michigan-Oakland vs. Oakland County Community Health, the Department of Community Health, Oakland County Commissioners, Tom Watkins, Dr. James Groves, Mr. Anthony Drabek, and Dr. Fulvio Ferrari.  The litigation committee consisted of: Fred Cummins, Hope Cummins, Ellen Hayes, and Hoyt Anderson.  The law firm of Columbo and Columbo was retained, and also Gilbert Donohue, Director of the University of Detroit Urban Law Clinic.  The lawsuit ultimately was dismissed after several years. 

       In 1990, State Board meetings started being held at the Ingham Regional Medical Center in Lansing.

       In 1990 work was started on the development of Rose Hill Center in Holly.

       In 1990, Carol Rees was nominated for the National NAMI Board at the National Convention, by Lou Vescio.  Carol won a position on the NAMI Board, and provided distinguished service for three years.

       Also in about l990, the AMI affiliates of Wayne County, Oakland and Macomb Counties formed the Southeast Michigan Council of AMI Affiliates, which obtained a 501-c-3 designation.  This was done for purposes of dealing better with the corresponding Community Mental Health Agencies in those counties, which previously had formed an association.  The Council had periodic meetings as the need arose.

       In January/February, 1991, Wayne County NAMI Affiliates formed a Wayne County NAMI Coalition

       In 1991, Arlie Kinnee was serving as Chairman of the Forensic Committee, with Betty Powelson and Norma Prouty serving as Co-Chairs.  The Committee developed a Police Training Program entitled "Managing Persons with Mental Disabilities".  This program used, as its foundation, a curriculum developed by the Police Executive Research Forum (PERF), and was accredited by the Michigan Commission on Law Enforcement Standards (MCOLES).  The first Michigan seminar was held at the Kellogg Center on the Michigan State University Campus on October 9-10, 1991.  Dr. David Kalinich, PhD, and Dr. Jerome Gallagher PhD served as faculty.  Following this initial seminar, training programs were conducted by the NAMI Forensic Committee in many locations throughout Michigan for a number of years. 

        Beginning around 1990, under Governor Engler and James Haveman, Director of  the Department of Mental Health, the State began closing many of the State-operated mental health hospitals and facilities.  In 1992, one of the facilities targeted for closure was the Lafayette Clinic, a research institution in Detroit affiliated with Wayne State University.  A lawsuit in opposition was brought by "Doc" and Jimmie Porter and Chet and Joan Huntley of Wayne County AMI.  The attorney was Susan McParland.  After initial temporary success, the litigation ultimately failed to prevail in the courts.  On October 16, 1992, the Lafayette Clinic was closed. 

       At a Board meeting near the end of 1992, the NAMI Michigan Board approved, in principle, the hiring of an executive director, per verbal communication of Arlie Kinnee.        

       In 1993, at the Annual Meeting in Grand Rapids, the NAMI Michigan bylaws were revised.

       In 1993, the Detroit-Wayne County Community Mental Health Agency, in collaboration with NAMI, developed separate Police Training specifically for Wayne County.  Clarence "Doc" Porter headed this training program for NAMI.   The first Police Training Workshop was held on October 4-5, 1993, and also involved David Kalinich, PhD, Jerome Gallagher, PhD, Colleen Conklin, Michele Reid, MD, and Ed Mischel.  Police training then continued with regular workshop meetings for many years.  Later, a group called Community And Police Partnership Advocacy (CAPPA) was formed and continued these activities.    

       In 1994,  NAMI Michigan left the office on Northwestern Highway and moved to a new office in the Mental Health Building at: 15920 West Twelve Mile Road, Suite 207, Southfield, MI 48076

       Another office also was opened at:  921 North Washington Avenue, Lansing, MI 48906

       At the Annual Meeting in 1994 at Midland, two Vice Presidents were elected for the first time.  In 1994, the Family Resource Guide was revised.  At the time of the Annual Meeting in 1994, there were 48 Affiliates.  A history of NAMI Michigan was written by Hank Spitzig and also by Erma Barber, considered to be the occasion of the 10th Anniversary of the development of NAMI Michigan. 

       In 1995, the NAMI office in Southfield was closed, leaving the office in Lansing as the sole office for the State NAMI organization.  Polly Neil began working as a part-time secretary in the Lansing office.

      In 1995, a revised version of the Family Resource Guide was published by Carol Rees. 

      On March 27, 1996, a revision of the Michigan Mental Health Code took effect. 

       At the 1996 Annual Meeting at the Holiday Inn South in Lansing, Tom Johnson was nominated for President by the Nominating Committee.  However, Ray Gauthier was nominated from the floor, and won the election. 

       Under the leadership and through the efforts of Ray Gauthier, grants were obtained from the Kellogg Foundation, Pharmacea, and Upjohn to create the ten week Families-in-Action Course, a "home-grown" course patterned after the National NAMI Family-to-Family course.  This was written by Michael Gieszer and George Kaufmann, supported by:  Kalamazoo AMI-SHARE, ACT of Kalamazoo, Kalamazoo County Community Mental Health, Gryphon Place, and the Sociology Department of Kalamazoo College.  

It was presented at the Gaylord Conference, Treetops Sylvan Resort, in October, 1997, under the leadership of President  David Sprey.

       At the Annual Meeting in December, 1998, the NAMI Michigan bylaws were revised again under the leadership of Fred Cummins.

       In 2001, Polly Neil resigned as secretary.  In January, 2002, Kristina Zwick was hired as part time secretary. 

       In January, 2002, HUGS (Help Us Grow Safely), a course for families of children with serious emotional disorders, was developed by Marty Raaymakers and Ray Gauthier, funded by a grant from Lilly. 

       In October, 2002, managed care as an administration of the State Mental Health and Developmental Disabilities programs was instituted throughout the State by Governor Engler and James Haveman.  This had required a waiver from the Federal Government, and involved considerable change in the way contracts were developed between the Department of Community Health and the Community Mental Health Agencies, and between the Agencies and the Provider Networks.  

 

     In 2003, NAMI Michigan received a grant from National NAMI for the purpose of developing a strategic plan.  Leon Judd, of Oakland NAMI agreed to be the facilitator, and support was provided by Richard Stevenson, the National NAMI Regional Director for Region III.  A series of regional meetings was held throughout 2003 as follows:

                        March 22 in Grand Rapids

                        June 14 in Escanaba

                        June 15 in Mt. Pleasant

                        August 2 in Livonia.

On September 13, 2003, a summary meeting was held at the MacMullan Center near Roscommon.  A strategic plan was developed which had seven main goals as follows:

1)    Strengthen Affiliates

2)    Recruit Membership

3)    Fundraising

4)    Enhance Communications

5)    Increase Staffing

6)    Improve Advocacy

7)    Improve Governance

 

     In early May, 2003, despite advocacy against it by NAMI and other groups, the State Psychiatric Hospital in Northville was closed.  Patients who could not be transitioned safely to community settings were transferred to State facilities at Walter Reuther in Wayne County, Kalamazoo, Caro, and Mt. Pleasant.  These were the only remaining State public adult mental health facilities.  The only remaining public children's mental health facility was the Hawthorn Center in Northville. 

       In July, 2003, based partly on interviews with NAMI members, the Mental Health Association and others, investigative reporter Gregg Krupa wrote a series of articles in the Detroit News pointing out problems with the delivery of mental health care in Michigan.  Later in 2003, Governor Granholm appointed a Commission on Mental Health chaired by Pat Babcock, with Waltrud Prechter serving as co-chair.   

       In the Fall of 2003, aided by funding from National NAMI, equipment was purchased, and teleconferencing of NAMI Michigan Board meetings, Public Policy meetings and others was begun.

       In 2003, application was approved by National NAMI for Michigan to participate in an annual NAMIWALK, a walkathon for fund raising and for decreasing stigma and obtaining publicity for NAMI causes.  The first WALK was held on Belle Isle in Detroit on Sunday, May23, 2004, with David Ballenberger of Rose Hill Center as WALK manager.  It was very successful, and became an annual event.

       The Governor's Commission convened in January, 2004, and met for several months through September, 2004.  Members of NAMI Michigan served on several workgroups of the Commission.  NAMI Michigan also conducted a State-wide questionnaire survey of its membership regarding mental health services.  This document was presented to the Commission and contributed to its deliberations.  The Governor's Commission issued its report in October, 2004. 

        In December, 2004, Kristina Zwick resigned.  In February, 2005, Charlene Miller was hired, but became ill and also later resigned.  Since the summer of 2005, a temporary agency has been utilized for provision of part time secretarial services.

       In 2005, as a result of funds obtained from the 2004 NAMIWALK, In Our Own Voice (IOOV), a signature National NAMI program presented by Persons with mental illness in Recovery, was brought into Michigan.  The first training session was held in Ann Arbor on March 5-6, 2005, with Marty Raaymakers as trainer.  This was presented under the direction of Susan LaBatt, Chairperson of the NAMI Michigan Education Committee, with the collaboration of Leon and Mary Ellen Judd of Oakland AMI.   

       On April 22-24, 2005, at the Annual Meeting at the Radisson Plaza Hotel, in Kalamazoo, Judy Hutchins of Alpena was elected the 10th President of NAMI Michigan.

 

       It is my intention and hope that this may become a document continued by additions in the future, possibly by means of summary reports by succeeding Presidents or other interested persons.

 

 

                                                                                    Hubert C. Huebl, MD

                                                                                    May 15, 2006

 

Presidents of NAMI Michigan-Their Affiliates-Annual Meeting Sites

 

1985-Hank Spitzig-Oakland and Suburban West-(Temporary President)

                        Southfield, Mental Health Association Building

1986-Hank Spitzig-Oakland-U. of M. School of Public Health, May 31

1987-Erma Barber-Genessee-Lansing-June 6

1988-Carol Rees-Washtenaw-Flint, Sheraton Inn, June17, 18

1989-Carol Rees-Washtenaw-Muskegon, Harbor Hilton, June 23, 24

1990-Lou Vescio-Saginaw-Southfield, Sheraton Hotel, May 4-6

1991-Lou Vescio-Saginaw-Kalamazoo, Kalamazoo Center Hotel, May 3-5 

1992-Fred Cummins-Oakland-Lansing, Holiday Inn South, June 17-19

1993-Fred Cummins-Oakland-Grand Rapids, Amway Grand Plaza, May 21-23

1994-Bev Lewis-Kalamazoo-Midland, Valley Plaza Inn, May 20-22

1995-Bev Lewis-Kalamazoo-Novi, Southeastern Hilton Hotel, May 5

1996-Ray Gauthier-Port Huron-Lansing, Holiday Inn South, May 16-18

1997-David Sprey-Grand Ledge-Lansing, Holiday Inn South, May 17, with Mental 

            Health Association.  Joint Conference with IASPRS, Gaylord, October 19-21

1998-Fred Cummins-Oakland-Ypsilanti, Eagle Crest, December 6,7and 8

1999-Fred Cummins-Oakland-East Lansing, Kellogg Center, Michigan StateUniversity, May 27

2000-Fred Cummins-Oakland-Ann Arbor, University of Michigan East Hall, June 3

2001-Fred Cummins-Oakland-Lansing, Holiday Inn West, May 6, 7

2002-Hubert Huebl-Dearborn-Muskegon, Holiday Inn, May 5, 6

2003-Hubert Huebl-Dearborn-Flint, Gateway Holiday Inn, and Rose Hill Center, Holly, May 4,5

2004-Hubert Huebl-Dearborn-Traverse City-Waterfront Inn, April 25, 26

2005-Judy Hutchins-Alpena-Kalamazoo, Raddison Hotel, April 22-24